Wednesday, November 27, 2013

What causes the narrowing?

I wish I knew what caused my narrowing.   There is a slight chance it was caused from being intubated when I had surgery when I was only ten. I kept having kidney infections and extremely high fevers.  They found out that one of my ureters was narrow and not draining which caused the infection.  At that time I was sent to Barnes Jewish Childrens Hospital (part of same hospital I'm going to now).  That was quite an ordeal and I believe I was in the hospital for two weeks.  I have a six inch scar around my side but it worked and I never had anymore trouble with that.  My hopes are that I can say the same after I have this next surgery.  I may have a four inch scar across my throat afterwards but if it works and I can breathe... it's all good.

So that's one possibility - being intubated.  They say that is one of the most common reasons but since mine was so long ago, and I don't remember having any trouble breathing as a child it's probably going to remain a mystery.

Another cause is Wegeners Disease -  http://www.mayoclinic.com/health/wegeners-granulomatosis/DS00833  I had not yet been tested for this so I asked the doctor last week if that is something I should be concerned with.  He didn't think so but decided to go ahead and do the blood work (C-ANCA) .
When I spoke to the nurse yesterday I asked her about the blood test results and she said no news is good news.  Then she checked and said it was within the normal range.

Other causes are trauma, infections, congenital, and a few others that are listed in the attached link. (top right under links; what is this illness)

I guess I'll never know the cause but that really doesn't matter; as long as I find a treatment/surgery that works to help me breathe.

Oh to be young again....




1 comment:

  1. It's hard for me to even think about what you are going through. You are so strong, I am proud to have you as my sister. I love you more than you know. Love the picture--and yes it would be nice to be young again.

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